201-996-9100 Bergen Office or 201-533-4407 Hudson Office
The Gift of Purpose

The Gift of Purpose

The Gift of Purpose

By Marianne Valls

My mother had given my life but Heightened Independence and Progress (hip) gave my life purpose and direction. I was born with cerebral palsy and although I earned a college degree, I thought that employment was impossible. All I could see were my limitations rather than focusing on all the things that learned along the way.

But that all changed in 1989 when I was volunteering at United Cerebral Palsy Center (UCP)  of Hudson County, I was asked to attend a meeting concerning the creation of a new organization designed to help people with disabilities integrate into the community.  Already established in Bergan County, Hudson hip’s mission was to introduce the Independent Movement to Hudson County.

For a while I divided my time between the Center and hip, but soon I began spending more time at this new organization.   It was the first time in my life that I saw people with disabilities taking charge of their own lives. They worked,  had active social lives and lived quite independently.

At the time I was married, but unfortunately, it did not give me the freedom I desired.   When I was married, I saw myself as a helpless creature having no choice but to rely on a man to support me. (Please note my ex-husband was a good man.  The fault of our break-up was entirely mine.) However, getting involved with hip, made me realize that I could have goals and a career beyond the duties of being a wife and homemaker.

In the beginning there were only two of us working at Hudson hip.  Bob Greenberg was the first part-time coordinator of the office and he suggested that I spend more time volunteering for hip.  At that time hip was housed in the office of the Hudson County branch of the NJ Division of Vocational Rehabilitation Services (DVRS). Bob thought that by volunteering the rehabilitation counselors could see my skills, which perhaps, would lead them to recommend me for employment. This made sense so I started to work on office tasks like filing, coordinating schedules and mailings  It may sound silly but in those days those days I was even afraid to use the copier.

Soon Bob left for a full time job and Maryanne Vacca replaced him.  Maryanne was totally blind so I became her reader.  Much to my surprise she learned to understand my speech which, up until  then I thought unrecognizable by anyone but  family and close friends. hip helped me find a voice which up to that point had been silenced by fear. Those who know me may find this strange since I’m known for speaking my mind, however, there was a small voice inside me that wondered whether people were really understanding me.    It was one of the first of many things that my employment at Hudson hip did for me. It did what Centers for independent Living are supposed to do; start one’s journey toward empowerment.

Eventually, MaryAnn left to marry and have a child and Kathy Wood took over to become coordinator of Hudson hip.  It was still the two of us and since Kathy is visually impaired I was still a reader. But now there were other tasks to do that required hand coordination which was challenging for me. Kathy didn’t seem to mind and soon neither did I; all that mattered was that we got the job done.

When Kathy went on medical leave I was left in charge of the office leaving me responsible for everything including answering the telephone. Admittedly answering the phone is one of my least favorite things to do, however, the call I answered led to the start of a lifelong friendship with Marily Gonzalez who joined the staff. She would later assume her current role as the Executive Director of the Hudson Branch.

Our office family was completed by Maria Smith who was hired as an independent living specialist with a heavy emphasis on clerical work. My cerebral palsy affects my motor skills and prevents me from doing tasks which require fine hand control so Maria and I worked as a team with her take my dictation when writing by hand or typing became difficult for me.

Though the years, my job evolved into writing flyers, press releases, and a quarterly column for the newsletter.  I would also go to health fairs and conferences on behalf of hip with Marily or Cathy. I was a member of the hip team and I got the chance to offer my opinions on disability issues and develop strategies for our consumers. Our workplace was filled with friendship, laughter and good will as we worked to remove barriers that prevent people from leading independent lives.

On one occasion Marily had been assigned to organize a conference with an emphasis on issues facing the Hispanic/Latino community. She was given the task of planning the meal and asked me for some advice about the menu.   I emphasized that the meal should not include rice since many people find it difficult to manage. I still smile when I recall the panic in Marily’s eyes as she rushed from the podium to apologize to me because the committee overruled her suggestion and rice was the main attraction. It was just one of those things but Marily was concerned that I’d be upset that my advice went unheeded.

While a paycheck is important work gives us so much more. It enhances one’s self-esteem and self-worth and enables people to make social contacts that can sustain us for a lifetime. Even though technology has changed the workplace in many ways by leveling the field for people with disabilities it’s the relationships that make the difference. Work is who we are and how we are viewed by others. It completes the life experience and I’m happy that I got to experience that in a place like hip.

Special

Special

“Special”

By: Diomayra F. Ramos
May 14, 2019

What is the first thing that comes to mind when you hear the word special? Do you instantly think of someone you love who is very special to you? Or, of someone who told you that you were very special? Upon hearing the word, we often relate it to love and admiration, sadly that isn’t always the case.

This past April, Netflix released “Special”; a TV show based on the life of the actor and writer Ryan O’Connell who has Cerebral Palsy.  Cerebral Palsy (CP) is a neurological disorder that is caused before, during or after birth, which can affect muscle movements, motor skills, and even speech.  Throughout the show, viewers can appreciate how much effort Ryan puts into concealing his disability to avoid being treated differently.  Denying his disability wasn’t intentional until he began noticing how accepting others were of his limp assuming it was the result of an accident rather than CP. It’s sad to think that the way a person maneuvers through life is more important than who he is as a person. What should matter is the type of person that he is on the inside. Having a special way of walking doesn’t take away from the awesome person that he is.

If you ask me, proving to others that you’re more than your disability can be pretty exhausting. Throughout the eight episodes of the series, Ryan tried endlessly to make others see that there was more to him than meets the eyes. Even though he walks differently, he had the same wants and needs as any gay individual. His sexual preference was never an issue, quite the opposite. So why be ashamed of your disability and not of your sexuality when both are part of the minority? The problem is that society has made disability such a taboo topic that it is easier to pretend you are not disabled, instead of having to work endlessly to show the world that you are more than your condition. That is what a disability is a condition, that’s it!

Sadly, society has put such a great emphasis for us to “fit in” that we end up doing everything to appear less different or in this case special. Since birth we were taught to behave and act a certain way to blend-in and not be considered an outcast. Instead of celebrating self-love and self-acceptance we’ve chosen to suppress that part of our lives. How can we learn to love ourselves just the way we are if we learned at a very young age that it’s wrong to be different? We cannot, it’s impossible.  We were taught to be closed-minded and to disregard anything that doesn’t make sense, rather than taking the time to get familiar with it. Don’t consider someone special just because they look or act differently; instead, take the time to really get to know them. By allowing yourself this opportunity you will see how special they are as individuals with unique qualities.

The hip Annual Meeting – Fort Lee, NJ

The hip Annual Meeting – Fort Lee, NJ

On November 15, 2018, hip members and staff gathered at the Fort Lee Recreation Center for the Annual meeting.  Following a light supper arranged by the Hudson staff there was a short business meeting at which the Board of Trustees were sworn in for their new terms and the Annual Report for the 2017 Program year was distributed.

Perhaps the highlight of the event was a moving and inspirational presentation by Victor Muniz. The 31 year old from Kearny shared his experience as a spinal cord injury survivor citing the various physical, employment and social barriers that he encountered over the nine years following his injury. Through it all hip was able to advocate for him and provide encouragement as he navigated the various social service agencies.

Things began to turn around for Victor in 2015 when he completed a training program to become a dispatcher and was later hired as a Security Systems Operator for the Hudson County Department of Corrections. He has recently taken delivery on his modified van which enables him to follow the flexible schedule of the job and it offers the freedom to travel around with his new wife Laura.

Everyone at the meeting was moved by Victor’s story and his willingness to share his journey as a peer support person.

Call Now Button

GET IN TOUCH!

Subscribe to receive our updates about

·    Letter from the Desk of the President/CEO

·    Newsletter

·    hip Happenings

·    Events

·    Announcements.

You have Successfully Subscribed!

Pin It on Pinterest